SYNOPSIS:

Conference: ‘Who Owns Your Body? – Beyond The Physical’ (6-7 November 2018)

Dr Morten Øien, Legal Advisor/Member of the International Society for Biological and Environmental Repositories Governance Committee

Abstract: Personalized medicine (PM) is often portrayed as the new paradigm of modern medicine. It by no doubt represents a fast-growing field in patient care globally, both in the private and the public sector. Genomics and related ICT-based technologies are core to PM, meaning that it can also be said to be part of a digitalization mega-trend. Furthermore, the world of PM necessitates the efficient interaction between biobanks/biobankers and owners/holders of clinical, imaging and laboratory data. What challenges are these novel developments posing in relation to biobank governance? The speaker intends to engage the audience in an active dialogue around the likely practical impacts of identified challenges.

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